Contact
If you have questions, suggestions, or need support, we're here to help.
Moya Moya is a rare condition, and no one should feel alone.
Reach out and we'll do our best to support you or point you in the right direction.
Email us at: help@moyamoyastrong.com
We try to respond to all inquiries within 1–2 business days.
FAQ's
What is Moya Moya disease?
Moya Moya is a rare, progressive cerebrovascular disorder caused by blocked arteries at the base of the brain. It can lead to strokes and other neurological issues.
Is there a cure for Moya Moya?
There is currently no cure, but surgical treatments can improve blood flow and significantly reduce the risk of stroke or bleeding.
How can I support someone with Moya Moya?
Offer emotional support, stay informed, help with appointments, and consider joining or creating support groups. Just being present means a lot.
Is Moya Moya hereditary?
In some cases, there may be a genetic component, especially in families of Asian descent. However, the exact cause remains unclear for many patients.
Can children live normal lives after surgery?
Many children go on to live healthy and active lives after surgery, though ongoing medical monitoring and therapies are often needed.
How can I get involved with Moya Moya awareness?
You can share our website, follow us on social media, participate in events, donate, or wear Moya Moya Strong merch to help raise awareness.
Where can I find a specialist?
You can start by searching for neurosurgeons or neurologists at major hospitals who specialize in cerebrovascular diseases. Mayo Clinic, Stanford, and Boston Children's Hospital are known for their expertise.